ok friends...i need to be honest and come clean with you all...i suffer from Fibromyalgia(FMS), diabetes, high cholesterol, high thyroid. In 1997 i retired because of the FMS. Since then i had to have total hip replacement 2003. In late 2008 they found i had total blockage of my abdominal aorta below the kidney artery.It took until July 2009 to get me into Barnes Hospital in St.Louis, Mo. The surgeon then referred me to a cardiologist, who found another problem. He referred me to a pulmonologist.He did a cardiac cath in February 2010.They made appointment for me to return in March 2010. That's when my world turned upside-down.He told me i have Idiopathic Pulmonary Hypertension. Only 1 in 5 million people are diagnosed with idiopathic. He then told me i have 2months to 1 year to live without any intervention.With the intervention i COULD extend my life 5 to 10 years. I had to wait for the ok from my insurance co to approve the procedure and the very expensive pump that delivers the medication. I underwent the surgery in April where they went into my Jugular vein into the upper part of my heart with a catheter that will remain for the rest of my life. The medication is very strong and can cause several side-effects, so they have to go very slow with how they increase it.It will take some time to get me to the level that they think i need, but i am doing ok. Each week i get higher in the number and although i have only seen a very small difference so far, they are sure i will see more the higher i go. It will be baby steps for a long time. I have to use a wheelchair to go anywhere right now cause i don't have the breathe to walk, and the medication is effecting my FMS real bad. My legs especially are effected but also my shoulders and back. I have been trying to be on here everyday and so far i have been able to be. I praise God for the wonderful Dr's i have and count the many blessings the Lord has given me daily.**** hello...My name is Barb. Our van needs work or we need a car that sits high up and has a trunk that is big enough for a wheelchair. We are on Social Security and can't afford this. We both have numerous health conditions. We take one day at a time.
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